BMI Activities 2009-2014
In June 2014, Dr. William R. Hogan joined UF and became director of the UF CTSI Biomedical Informatics Program.
Previously the program was led by Dr. Michael Conlon, co-director of the UF CTSI. Following is a summary of the BMI Program’s activities from 2009 through the spring of 2014.
The CTSI Portal
The CTSI portal has been updated to use the new UF Health theme. Using WordPress, the portal provides a scalable platform for CTSI information needs. Locally built WordPress plug-ins support the StudyConnect and VIVO. Additional automation supplies lists of core facilities, institutes, centers and recent papers by UF authors. We work with the program leads and their designees to improve the content in all areas of the portal. New ideas for the portal, including story ideas, can be sent to email@example.com.
Personalized Medicine is a new program of the UF CTSI. Infrastructure has been created to collect SNP information, process it as *-alleles, and deliver pathology reports to Epic for the purpose of informing physician practice.
Integrated Data Repository
UF Health is implementing a large-scale, enterprise integrated data repository to support quality care and clinical research. The IDR will enable new lines of research, support cohort identification, and improve patient quality. Dr. Conlon serves as the outreach lead for the integrated data repository project, which uses i2b2 technology. The repository will provide data registry services indicating sets of data available through the repository.
Consent for Research Use of Tissue and Data
In order to conduct research using warehoused data, we will need to consent our patients and study subjects for reuse of their data — that is, use of their data beyond the primary purpose for which it was collected. Such consent, properly managed, can simplify the requests for data we have collected. See the project page. Many other institutions have already created such a consent. For more information, please contact Peter Iafrate (firstname.lastname@example.org).
Social Security Administration’s Death Master File
As part of the IDR, the Social Security Administration’s Death Master File has been made available for matching case records.
Health Information Exchange for Alachua County
Working with Healthy Alachua, the UF CTSI is exploring opportunities for the creation of a health information exchange for the people of Alachua County. Using an approach proven in other communities, the exchange affords individuals an opportunity to consolidate their medical information and provide it to caregivers as needed. See Health Information Exchange regarding this opprtunity.
VIVO: Create, Share, Discover
Dr. Conlon is a member of the executive committee of VIVO: Connect, Share, Discover. See the project web site at vivoweb.org and the project software repository at vivo.sourceforge.net. VIVO provides information about scientists, their interests, activities and accomplishments, in open semantic web format, easily consumed by a next generation of collaboration tools. VIVO is used by UF CTSI to provide information regarding people on various workgroups. We continue to increase the quantity and quality of data in VIVO over the coming year, as well as create new tools for reporting.
Click Commerce for IRB
Dr. Conlon serves as a sponsor and stakeholder for the IRB project to implement Click Commerce.
The BMI program of the CTSI has developed a comprehensive study registry for the University of Florida. The simple goal of this work is to provide an answer to the question, “What human subject research is currently going on at UF?” Data from all four IRBs has been combined into a single data resource. Multiple views of the data will be provided. StudyConnect provides a listing of all studies open for enrollment.
CTSI Service Delivery Systems
The BMI program, CTSI Home and Tracking and Evaluation Program, working with the CTSI program directors and CTSI community, has evaluated, selected and implemented service delivery systems for the CTSI. The systems provide information on return on investment in the CTSI, including program activity and investigators served. The systems should provide important management and quality data, program metrics, and reduce the effort required to produce the annual report, while improving its quality.
The UF CRC has a collection of legacy applications for scheduling, adverse event reporting, sign on, and others, whose management will be transitioned. Functions may also be transitioned to new platforms following analysis.
Health IMPACTS for Florida, a UF-FSU Collaboration Integrating Medical Practice and Community-based Translational Science
Health IMPACTS for Florida is a joint effort of the UF CTSI and the FSU College of Medicine to build a research network of physicians performing clinical research across a wide range of practices in Florida. Network start-up is funded by a grant from the State of Florida, matching funds from Florida State University and the UF CTSI, and a supplemental award to the UF CTSI from the NIH/NCATS. The BMI program, through CTS-IT, created a data capture system, portal and collaboration center.
Epic for Research
Epic provides an unmatched opportunity to improve clinical research at UF Health. By creating a mechanism for extracting data from Epic, governance and access polices, as well as some standard data elements to be collected on all patients, we can greatly facilitate clinical and translational research at UF.
REDCap for Electronic Data Capture
The REDCap system has been implemented in collaboration between the BMI program, the RKRS program and CTRIP. REDCap provides electronic data capture services to all UF investigators. Use of REDCap is free of charge. See the REDCap service page for details.
REDCap Survey has been implemented as part of the REDCap system.
The UF CTSI participates in The Biositemaps Working Group of the NIH Roadmap National Centers of Biomedical Computing (NCBC; www.ncbcs.org). See Biositemaps.org. This effort registers research resources across the country. The UF CTSI registers its resources and those of interest to UF clinical and translational science researchers. Registered resources can be found via the Resource Discovery System at http://biositemaps.ncbcs.org/rds/.
BMI works with UF Health IT and the CTSI Biorepository team to implement OnCore BMS and interface it to the freezers. Together, this software will provide sophisticated query, update, storage and retrieval of specimens and specimen information from the biorepository.
Clinical and Translational Informatics Program reorganized
The unit formerly know as CTRIP, the Clinical and Translational Informatics Program, has been restructured. The new unit, CTS-IT, reports to the CTSI. Fee-for-service and grant work continues to be supported. To schedule an appointment regarding your information needs, please contact Chris Barnes at email@example.com.